Thursday, December 8, 2011

“Nothing but the truth”

Perhaps that’s stretching facts a little too far, to claim that anything is the absolute truth. Rather I ought to say my perception of the ‘doctor’s line’. Without needlessly bothering you with what you don’t want to hear, let me start off with a reality so many suffers share - a good number of hyperhidrosis suffers, or let me dare say, all hyperhidrosis suffers at least once in their life-time have gotten a bad vibe from a doctor regarding the condition. While this ‘line’ has been delivered with varying degrees of diplomacy, ranging from a polite ‘don’t worry about it, it will stop as you add more years’ to ‘if this is why you came here you are wasting my time’. Following the frustration that one immediately feels, one wonders why these doctors just CAN’T GET IT. How can one explain such insensitivity – or shall we say negligence – considering that patients are in actual fact clients – be served and not beneficiaries of charity. I hope by exploring the underlying factors behind this behaviour – hyperhidrosis patients may find their frustrations with doctors more bearable and perhaps even more might empower them to change this situation. The first and most obvious explanation is ignorance i.e. that lack of knowledge of the condition might cause them to not treat the patient satisfactorily. While there is a lot truth in this, but by intuition when doctors meet something they are ignorant about their curiosity must be raised causing them either to do more research about the issue or condition or to refer to more experienced colleagues. The second, underlying yet more intricate issue is misconception about hyperhidrosis – this in my view does explain a greater part of the attitudes and behaviour of doctors. Of course the major misconception is on the true impact on the life of the patient. Its imaginable that doctors thinking logically would not regard hyperhidrosis as having the same level of impact or even greater as a condition like psoriasis – and yet that’s exactly what research reports. Ironically even among doctors who have strong knowledge of hyperhidrosis, their perception of the impact of the various forms of hyperhidrosis i.e axillary, palmar-plantar, is often in contradiction to what patients experiencing these forms of hyperhidrosis have reported. Of course there are more issues to this problem, but let me stop there for now. So what is the way forward? Clearly it’s not enough to sing “Amazing Grace” to them; they have to be taught the lyrics as well, so that they can sing along. Raising awareness of the condition while being a very important goal, is not the end of the story, the ultimate is to enable doctors to see things from the perspective of the patient – this will be the day of liberation to the hyperhidrosis suffers.

4 comments:

  1. As a physician whose practice consists of only treating patients with HH, I also suffer from HH and understand your points completely. Having suffered from underarm HH since I was in my teens, I know all the emotions and fears that someone who has this condition experiences. Since I have been treated with Botox for the past 10 years I can also attest to the excellent results it provides.
    The two comments I hear form my patients are that they did not know other people suffered from HH and that there was actually a treatment for it. Education of both patients and other physicians are the key to helping treat this condition.

    Perry Solomon, MD
    San Ramon, CA
    USA

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  2. For a personal account of life with hyperhidrosis, please visit my blog at www.mylifeasapuddle.com

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  3. Danidog, What you have said is dead on. The challenge is in how to bring together (for lack of a better word let me say reconcile) the views of patients and doctors. Of course one should not be fooled into imagining that there is a silver bullet to the problem...one thing I am sure about is that whatever is done must take into account how physicians make decisions...source for information and so on...

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  4. My life as a puddle, I have been reading your articles, the hard part for me is that the more I dig into hyperhidrosis the more questions I get than answers...how then do we ensure that knowledge of available state of art treatments for hyperhidrosis diffuses across physicians...? Thats the missing link ! But even if we got all physician to know about this condition...societal view on hyperhidrosis needs to change because ca. 65% of people who should be treated for hyperhidrosis suffer in silence...either not knowing what their sweating is all about or unsure whether a cure is available...

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