Hyperhidrosis (HH), a skin disorder characterised by excessive sweating beyond the requirements of the body, is known to have negative implications on the Quality of Life (QoL) of HH patients. I am part of a team (lead researcher) from CSER Welsh School of Pharmacy developing a new measure for assessing QoL in HH patients. This blog is our medium of sharing our experiences in the research process and connecting with interested patients and other researchers.
Thursday, December 8, 2011
Conversations with Hyperhidrosis Sufferers
The first phase of the study on hyperhidrosis outcomes has been completed, with lots of lessons learnt.
We had a chance of holding two online focus groups and interviewing at least 25 suffers. This was supplemented by an online survey questionnaire. In the end we collected information from at least 70 English speaking patients.
Additionally collected information from at least 30 German hyperhidrosis suffers, through a postal survey.
I am very pleased to be sharing our experiences over the coming weeks.
We hope that our lessons will be valuable not only to hyperhidrosis suffers but also to doctors and researchers alike.
Here are the upcoming article titles:
I. Even breathing makes me sweat.
II. Two irreconcilable worlds: doctors vs. patients.
III. Sweating in silence and fighting for recognition
IV. “My deepest longings”.
V. "How the system failed me"
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